Blog Header

Blog Header

Thursday, September 17, 2009

Update on Treatments

I had my first treatment on Tuesday evening using the new drug for Gaucher's Disease. The treatment went really well and we were given a lot of good information. I did however experience a headache the rest of that night and all day yesterday. It feels much better today. I still feel just a little ache, but I can at least deal with that. The enzyme should be out of my system in 48 hours so I am thinking I shouldn't feel any thing after today.

We learned that there is only one or two treatment centers that will be able to offer this enzyme during the time that the old enzyme is unavailable. That means there are over 2000 people out there that aren't going to be able to receive any treatment. I couldn't believe how fast I went downhill with out any enzyme and really am fortunate to be in an area where the treatment is available. Please pray for all of the people out there that will not be given treatment, I know that some of them are in much worse shape than I am in, and can't imagine how they will be able to function in 3 more months.

Thanks,
Mae

Being confident of this very thing, that he which hath begun a good work in you will perform it until the day of Jesus Christ: Philippians 1:6

Friday, September 11, 2009

Apple Pie Filling

Here is a link for canning apple pie filling: http://www.pickyourown.org/pdfs/applepiefilling.pdf
It explains the whole process very clearly.

This year I am using Cortland, Macintosh, and Gala apples. It is best if you use a mixture of apples. Some cook apart easier than others and this way you have some that are still big and chunky, and some little pieces, in the filling.

I used this filling last winter to make some of the best dump cake I have ever had. I used the traditional recipe

1 box cake mix (yellow cake mix)
1 jar of pie filling (your choice of fruit)
1 can of crushed pineapple (slightly drained)
1 stick of butter
1 -1 1/2 cup of crushed pecans

Preheat oven to 350.

Lightly grease bottom of a 9X13 pan
Pour pineapple in pan, spread evenly
Pour pie filling on top of pineapple
Sprinkle entire (dry) cake mix on top of fruit.
Sprinkle desired nuts on cake mix.
Cut butter into chunks and dot all over cake mix
Bake for 45 mins to 1 hour.
Or until slightly browned.

This made the best dump cake I've ever had.

Enjoy
Mae

Thursday, September 10, 2009

Where Did It Go?

I am talking about the time, of course. I didn't realize it had been so long since I had posted. But after checking the blog today, I see that has been a while.

Things have been pretty busy, we are finally having church in our new building. And that has been a real blessing. The fire department was great but it is wonderful to have a building that is ours and has tons of room to spread out and grow in.

Hopefully, things are working out with my treatments. I will have one on Tuesday afternoon. It is not the enzyme that I use to get, but a new still experimental drug. I am a little nervous about that, but I am getting to the point that I am just about willing to try anything. I am getting very fatigued and my hips are starting to ache. It makes me realize how much things have changed for me since I started treatments about 9 years ago.

Over the holiday we went back to the apple orchard that we discovered last year and they were running the same special as they did last year. Pick 1/2 bushel and get another 1/2 free. So for $17.50 we got a bushel of apples. I intend to make more pie filling than I did last year as we ran out of apple pie filling sooner than I would have liked. But I won't get to that until the weekend after next.

I have started decorating for fall and as I said before I really am looking forward to it. It's just too bad that it's followed by winter. We went to the commissary on Friday and bought some of the things that I thought I was only going to be able to get when we went down to Georgia. Mary B's Open Kettle Dumplings and House of Autry Chicken Breader. The dumplings make some of the best chicken and dumplings that can be made without getting out the old rolling pin and making a big mess. It makes it easy to make chicken & dumplings and takes a lot less time. The chicken breader, I use to make chicken nuggets. I don't use it to make fried chicken, but it really does make good chicken nuggets and it's pretty good on fried pork chops. For the chicken nuggets, I buy whole, skinless chicken breast and cut into bite size pieces, I salt them and use garlic pepper on them instead of regular pepper. Then drop into hot oil and fry until golden brown. They are better than any restaurant nuggets out there.

Have a great day and enjoy the fall.

The heart of her husband doth safely trust in her, so that he shall have no need of spoil. Proverbs 31:11